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  • Kimberley 9:26 pm on August 24, 2011 Permalink | Reply
    Tags: , bowel program, , nurses   

    I’m Pretty Sure I Would Have Remembered That 

    I’ll get into why I haven’t had Internet access for awhile later, but right now I must vent a little (OK, maybe a lot)!

    Tonight I asked the nurse what was happening with my bowel program. I’ve been having so many spasms recently they deemed it unsafe for me to get in the chair I use to do it and I was wondering if it was happening in bed or in the chair. That’s when my nurse informed me that I had “moved my bowels” this morning! Well, if I did it was news to me! I’m pretty sure I’d remember someone coming into the room, takin my pants off and sticking an enema up my butt even though I can’t feel it!

    Instead of taking my word for it the head nurse called another nurse that was working today to get the phone number for the nurse I had today to ask her if my bowel program was done or not!

    After all that, it was determined that my memory is indeed still intact and that I didn’t have my bowel program or any type of accident. So much for actually listening to the sane patient and not wasting time… I guess that makes too much sense, and we all know how Eastern Health was behind the door when the sense was passed out!

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    • Ellen 3:14 am on August 25, 2011 Permalink | Reply

      Ok, I must know. Isn’t there some kind of chart or log the staff there is supposed to fill out or notate when things/procedures get done? And if not, maybe suggesting it to the ‘head nurse’ would be an idea. Could be a good way to not waste time.

      • Kim & Duke 10:47 pm on August 25, 2011 Permalink | Reply

        It’s suppose to be written in the patient’s chart. I think they may have gotten me and the girl who was moved from this room mixed up or something in this case. I’m lucky it wasn’t anything serious and that it was straightened out. Sometimes the nurses will write things in just before they do them instead of after too.

    • Chloe 7:03 pm on August 25, 2011 Permalink | Reply

      I’m glad that you’re back! And I’m glad that somebody (you) is on top of things even if nobody else is. But how do you know they don’t do your bowel program while you’re asleep?

      • Kim & Duke 6:19 pm on August 26, 2011 Permalink | Reply

        Thanks Chloe, I’m glad to be back and that you’re still here! I know because I never gave them permission and if I ever found out they did I would not stop until they lost their job permanently!

        • Chloe 2:29 pm on August 27, 2011 Permalink | Reply

          Note to self: Do not give Kim a surprise hair cut while she’s sleeping.

          • Kim & Duke 8:56 pm on August 27, 2011 Permalink | Reply

            Are you saying there’s a problem with my hair? lol! Also, remember I can feel my head!

    • Chloe 9:12 pm on August 27, 2011 Permalink | Reply

      Well, you did say recently that you were thinking about a new hair cut. Did you get it yet?

  • Kimberley 3:06 pm on July 31, 2011 Permalink | Reply
    Tags: , ankles, blood pressure, , , mattresses, , , nurses, ,   

    What’s Causing The AD? 

    Around 2:30AM on Saturday morning I was still awake and not feeling very well at all.  I had Autonomic Dysreflexia, which was confirmed when my blood pressure was checked and it was 171/some very high number!  My blood pressure usually stays nicely around the 90/60 mark.  The AD got worse while I was doing a catheter (it should have been going away, not getting worse), so the wrinkles were smoothed out of the sheet I was laying on, my bowel was checked (even though my bowel program was only completed about five hours earlier), and my feet were checked for any ingrown toenails or pressure spots.

    My blood pressure did start to come down, and the nurses went to contact the doctor that was on-call.  While they were doing that I felt like I was going to throw up and discovered quite by accident that the cause of my AD was connected to my left leg.  As I turned it sideways to stabilize myself the AD started to go away.  I called the nurse back in and told her about my findings.  She checked my hip and the side of my leg for pressure sores (I use a special mattress, so it was unlikely but still possible) and thought that the muscle spasms I’ve been having were possibly causing the AD attacks.  That’s when the other nurse came back in and noticed a pretty substantial bruise forming on the outside of my left ankle!  It turns out that at around 11PM when my leg got caught in the rail of my bed after a spasm it was injured from another spasm that pushed it through further before pulling it back towards me.  The Doctor told them to keep checking my blood pressure every four hours (more if needed) throughout the night and to give me Tylenol and Toradol on a schedule for the next little while (I just had my last regular dose of Tylenol at 2PM).  The doctor came in on Saturday morning to check my ankle and it seems like it’s just a pretty big bruise, so hopefully it will get better soon!

     
  • Kimberley 6:35 am on July 29, 2011 Permalink | Reply
    Tags: , mornings, , nurses,   

    I Just Got Quite The Wake-Up Call! 

    I just got quite the wake-up call! After waking up only to figure out I was on an angle across the bed on my side and too close to the rail to actually move anywhere I called the nurse who had just brought in my catheter supplies to help me get unstuck. Then after setting everything up to do my morning catheter at 6AM I opened the cath up and discovered it didn’t even bend. It was a size 14f! I use size 10f, so there was quite a difference in the size! I rang the nurse and told her it was huge and she got me my regular size. It was scary big!  She said they usually use that size for males. They usually use size 12f for females but even that size causes problems for me.

    I decided seeing how I was awake I would check the CBC news website to see if anything interesting has happened in the news, but I ended up turning on the TV and an episode of Family Guy was on (the one where Lois finds out she’s Jewish) and I started watching that instead. Then I proceeded to dump some cinnamon apple sauce over my white shirt and now I’m debating whether to get another couple of hours of sleep before breakfast. I guess that’s my morning so far…

     
    • Chloe 10:34 am on July 29, 2011 Permalink | Reply

      Sometimes days just start out as a disaster area! My opinion is it’s better to go back to sleep, and pretend none of it happened when you wake up again.

      • Kim & Duke 12:21 pm on July 29, 2011 Permalink | Reply

        If only you left this comment sooner lol I probably would have followed your advice! I ended up staying awake watching TV and browsing the Internet until breakfast. I felt completely drained by 10:30AM, but I did shave my legs this morning so… lol! The RT was a complete slave driver today though lol he tied me and another quad up in his gym and made us lift weights and use the hand bike for nearly an hour. At least he remembered to untie us for lunch lol! I’m not quite sure what effect this will have on physio. at 1PM though.

  • Kimberley 11:22 pm on July 26, 2011 Permalink | Reply
    Tags: , , , nurses, , , , shoulders, , transfers,   

    For The First Time In 88 Days… 

    A little after 10AM today my OT, PT and another PT for back-up came into my room and got me out of bed using the lift.  This happens quite frequently, but the difference this time was that I was placed in my own wheelchair for the first time since the very early morning hours of April 30th!  After sitting for a few minutes, securing me to the backrest and adding a strap to make sure I didn’t tip over with spasms I managed to push myself down to the nurses’ station.  I felt like I was pulling the two PT’s behind me!  I knew my arms were weaker from not using them so much, but I wasn’t expecting them to be as weak as they were.  I’m not quite sure how much is because of the medication or the lack of as much use, but my shoulders are still a bit sore tonight over twelve hours later!

    I did manage to push myself partway to the gym that’s down the hall and did a transfer to the hi-lo mat and back without a transfer board which is a start I guess.  I was spasming the whole time, but once I got back to my room I had a bigger spasm that straightened my body out most of the way.  It wasn’t enough to tip me over with all of the people around holding me, but it was enough to know that my wheelchair is still deemed unsafe for now.  I have an appointment with my OT and the seating person on Thursday at 11AM and hopefully they will listen to what I need and we can go from there.  The next step is to get a demo chair to use while we figure out what I will need once I leave here.  Wish me luck!  I think I’m going to need it…

     
    • Chloe 1:04 am on July 27, 2011 Permalink | Reply

      Thinking of you a lot, and wishing you the best possible outcomes.

    • Danielle Sainte-Marie 3:09 pm on July 27, 2011 Permalink | Reply

      Hi Kim,
      Am I correct in thinking that it was nearly three months before you were able to use your own wheelchair? From reading this first account of yours (I apologize for being so late to the party here…narcissistic writer that I am, and all that), I am not sure why the powers that be deemed your wheelchair as still unsafe when it seemed you were doing quite well in it. What am I missing here?
      Your Friend,
      ~Danielle

      • Kim & Duke 5:18 pm on July 27, 2011 Permalink | Reply

        Hi Danielle, Thank you for visiting my blog! You are correct. My wheelchair is considered unsafe because I have spasms that are strong enough to tip it over. Before I was admitted to the hospital I was coming out of it quite frequently because of spasms. It also doesn’t have anti-tippers or a seatbelt and all wheelchairs that are used by patients here (even their own) has to have these things before they are approved to be used.

        • Danielle Sainte-Marie 6:36 am on July 29, 2011 Permalink | Reply

          Thank YOU Kim! I have so much to learn…can you educate me on what anti-tippers are like for a wheelchair? Their function seems obvious, but I am curious how they work, how expensive they are, etcetera.

          • Kim & Duke 2:46 pm on July 29, 2011 Permalink | Reply

            You’re welcome. anti-tippers are the little wheels that some people have on their chairs that stick out behind the big rear wheels and are close to the ground. If the wheelchair tips backwards they prevent it from tipping completely over. Most have two small plastic wheels on each side of the tube, but you can also get ones that have one roller blade type wheel and various other styles. They basically all do the same function. By the time you buy the anti-tippers and hardware that fit your specific wheelchair the price can easily become a couple of hundred dollars or more.

  • Kimberley 12:26 am on July 17, 2011 Permalink | Reply
    Tags: , medical supplies, nurses, oddities   

    Well That Was Odd… 

    I just thought I’d mention a rather odd experience I had happen to me last week. I never experienced it before and was wondering if anyone else did. I was given a catheter and after poking around five or six times my bladder still wasn’t emptying. I am usually pretty good at and the majority of the time I get it on the first try, or at least the second. I knew it was in the right place, but couldn’t understand why nothing at all was happening! If a catheter blocks it usually happens after at least a drop of urine passes through. I told two nurses and we were all completely stumped. I got another catheter and asked (out of pure curiosity) if they saw anything blocking the one that wouldn’t drain. Nothing was blocking it, but there were no holes! No wonder nothing happened!

    Note: For anyone who isn’t familiar with catheters there are two holes near the tip that are on opposite sides and staggered a bit so urine can drain.

     
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